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NASP Communiqué, Vol. 34, #5
February 2006
Pediatric School Psychology
The Prevention and Treatment of Eating Disorders: An Overview for School
Psychologists
By Catherine Cook-Cottone & Melinda Scime
Eating disorders are disruptive to psychological and social development, interfere
with learning, and place students at medical risk (Hoek & van Hoeken, 2003).
They can be difficult to prevent and treat, chronic, and present along with
Depressive Disorders, Obsessive Compulsive Disorder, and Personality Disorder
as well as an increased likelihood of diagnosis with Anxiety Disorders and/or
Substance Abuse (American Psychiatric Association [APA], 2000).
Generally, the statistics are not encouraging. Body dissatisfaction and dieting,
the two strongest predictors of eating disordered behaviors, have become nearly
normative (e.g., Cook-Cottone & Phelps, in press). The prevalence rate
for Anorexia Nervosa (AN) is 0.3% for young women and, for males, approximately
3 in 10,000 (APA). The prevalence rate for Bulimia Nervosa (BN) is estimated
at 1% in young women and 0.1% in young men (Hoek & van Hoeken, 2003). From
1953-1999, the mortality rate for those diagnosed with AN averaged around 5%,
the worst of any clinical disorder (Steinhausen, 2002). In a study of AN survivors,
less than 50% recovered, 33% improved but were not considered recovered, and
20% remained chronically ill (Steinhausen, 2002). Outcomes have been relatively
promising for those diagnosed with BN, with evidence of up to 75% of those
diagnosed not meeting criteria at 5 years (Ben-Tovim, 2003). In response, efforts
have begun to demonstrate the efficacy of school-based prevention and treatment-support
efforts (Cook-Cottone, Kane, Scime, & Beck, 2004). This overview provides
a description of symptoms and etiological research, and addresses practical
prevention and intervention support strategies, with the role of the school
psychologist explicated.
Symptom Overview
Eating disordered behavior is characterized by an intense preoccupation to
be thin accompanied by a pathological fear of gaining weight and a severe disturbance
in eating behavior (i.e., self-starvation, food restriction, purging of food,
and/or a cyclic binging and purging of food). The Diagnostic and Statistical
Manual of Mental Disorders, Fourth Edition, Text Revision (DSM-IV-TR,
APA, 2000) currently lists Anorexia Nervosa and Bulimia Nervosa.
Anorexia Nervosa. Individuals with AN pursue and/or
maintain excessively low body weight (i.e., 85% of normal weight) through a
reduction in food intake (other methods may include self-induced vomiting,
misuse of laxatives or diuretics, and/or excessive exercise). Often, they are
intensely afraid of gaining weight and demonstrate a significant perceptual
disturbance regarding the size or shape of their body. Younger children may
fail to make expected weight gains as they increase in age and height. There
are two subtypes: Restricting Type (primarily restriction of food intake) and
Binge-Eating/Purging Type (purging with/without binging).
Bulimia Nervosa. Individuals with BN also place an
excessive emphasis on body shape and weight in their self evaluation (APA,
2000). However, individuals with BN struggle with recurrent episodes of binge
eating and use inappropriate compensatory behaviors to prevent associated weight
gain (e.g., self-induced vomiting, misuse of laxatives, diuretics, enemas,
fasting, or obligatory exercise). There are two subtypes: Purging Type (regular
engagement in the use of vomiting, laxatives, diuretics, or enemas) and Nonpurging
Type (use of other compensatory behaviors such as fasting or exercise; APA,
2000).
Etiology Research Brief
Although etiology is not well understood, researchers are working toward
a well-integrated, comprehensive model that accounts for the variables associated
with eating disorders (Myers, Wonderlich, Norton, & Crosby, 2004). Empirically-identified
risk factors related to onset include biological, psychological, and social
factors. At the individual level, these factors include self-regulation, dieting
and set-point related physiological disruptions, pubertal onset, and the disordered
development of self-concept (Jacobi, Paul, deZwaan, Nutzinger, & Dahme,
2004; Wisniewski & Kelly, 2003). Gender is also a strong risk factor as
only a small proportion of clinical cases are male (APA, 2000). Both genders
show increases in incidence in specific weight-sensitive, athletic or social
contexts (e.g., boxing, dancing, gymnastics; Patel, Greydanus, Pratt, & Phillips,
2003).
At the interpersonal level, eating disorders are associated with a variety
of familial factors such as low levels of parental attunement, poor communication,
and physical and sexual abuse (Wonderlich et al., 2000). In some cases, specific
family characteristics may protect against eating disordered behavior and encourage
the development of emotion regulation and problem solving (Wisniewski & Kelly,
2003). The importance of media influence is illustrated by a now-world famous
study: Becker, Burwell, Gilman, Herzog, and Hamburg (2002) measured the eating
disordered behavior of two cohorts of Fijian adolescents: one cohort had been
exposed to television for only a few weeks while the other cohort had been
exposed for 3 years. Eleven percent of those who had been exposed for 3 years
reported engaging in self-induced vomiting, 74% reported feeling fat, 69% stated
they had dieted to lose weight, and 29% were assessed to be at risk for a clinically
significant eating disorder. This is in contrast to the group briefly exposed,
who reported no eating disordered behavior and general satisfaction with their
bodies.
The School Psychologist’s Role in Prevention and Intervention
Support
School psychologists play a key role in facilitating ecological continuity
of care for children and adolescents with health-based issues. The school psychologist’s
ability to consult (with teachers, families, and medical personnel), intervene
(through prevention, individual and family counseling, and support), and assess
(cognitive, emotional, and behavioral domains) makes the school psychologist
uniquely critical to the prevention of support for those with eating disorder
symptomatology.
Prevention and the Three Tier Service Delivery Model: Developmental
Implications
Using mental health prevention terminology, primary prevention efforts focus
on the promotion and maintenance of healthy development and the prevention
of eating disordered attitudes and behaviors (i.e., before symptoms begin;
Cook-Cottone & Phelps, in press). This is consistent with the tier 1 service
delivery approach, school-wide prevention services available for all students
(e.g., National Joint Committee on Learning Disabilities, 2005). Secondary
prevention efforts are meant to target the identification and correction of
eating disordered attitudes and behaviors in the very early stages, before
a full clinical disorder manifests (Cook-Cottone & Phelps, in press). Such
efforts are more consistent with the tier 2 and tier 3 levels of service delivery.
That is, tier 2 prevention efforts are specifically designed for, and delivered
to, at-risk students. A referral and/or more comprehensive assessment (tier
3) is completed for students who continue to need services beyond tier 2 specialized
prevention efforts.
Traditional primary prevention programs may be most effective in the lower
elementary years before the crystallization of the preoccupation with body
shape and weight within the construct of self (Piran, 2001). For many years,
prevention efforts have been aimed at later middle school and high school students
because it was believed that eating disordered behaviors and beliefs were rare
among prepubertal children (Thelen, Powell, Lawrence, & Kulnert, 1992).
However, research reveals that eating disordered behaviors and risk factors
associated with their development may emerge as early as fourth grade (Thelen
et al.).
Regarding older students, there is an increasing likelihood of internalization
of the thin-ideal, dieting, and experimentation with eating disordered behaviors.
Accordingly, the notion of a pure primary prevention program is not realistic.
It may be effective to combine primary (tier 1) and secondary prevention (tiers
2 and 3) efforts (Piran, 2001). To illustrate, a yoga and wellness group run
as part of the school’s wellness program is open to all interested students
(tier 1, primary prevention). However, teachers, staff, parents, and administrators
are also encouraged to refer students with whom they are concerned (tier 2,
secondary prevention). Group curriculum includes: self-care (e.g., yoga/relaxation),
life skills (e.g., assertiveness), self-skills (e.g., emotional regulation),
and community-based skills (e.g., media literacy). The emotion regulation curriculum
covers topics such as how to make healthy behavioral choices while struggling
with difficult emotions. Although this is a common adolescent challenge (tier
1), it is also a specific skill deficit believed to be connected to those at-risk
for symptomatic expression (tier 2).
Implementation of a prevention program. Traditionally,
eating disorder prevention programs have been didactic and psychoeducational,
showing little efficacy (Littleton & Ollendick, 2003) and, in some cases,
increasing symptomatology (Carter, Stewart, Dunn, & Fairburn, 1997). Thus,
the current trend in prevention is an interactive, experiential approach, embracing
the positive psychology paradigm. Active learning is believed to increase content
acquisition and the positive psychology model may reduce symptom learning (Cook-Cottone & Phelps,
in press). Keeping groups small and single-gender has also been effective (Franko,
2001).
Identify at-risk individuals. The earlier
an eating disorder is detected and treated, the better the prognosis. A strong
behavioral indicator of risk is dieting (Thomas, Ricciardelli, & Williams,
2000). Dieting behaviors are not limited to adolescents and adults; they occur
in children as young as 8 years-old (Thomas et al., 2000). Some other risk
signs include excessive exercising; losing weight; eating only certain foods;
obsessing over food, body, weight, or dieting; adopting odd eating rituals;
lying or making excuses about eating; hiding weight loss with loose clothing;
refusing to eat in front of others; frequenting bathroom after meals; and exhibiting
moodiness and withdrawal.
Make referrals/be aware of resources. To
facilitate a timely referral process, each school should have a resource person
(e.g., the school psychologist) to handle eating disorder concerns (Smolak,
Harris, Levine, & Shisslak, 2001). This resource person should be knowledgeable
about how to approach individuals at-risk for an eating disorder, how to communicate
with parents, and how to make referrals to an appropriate professional practitioner
or agency (Smolak et al., 2001). It is essential that school psychologists
be prepared with information about community resources.
Intervention Overview
Once symptomatology reaches clinical levels, individuals with eating disorders
require comprehensive and multifaceted care (American Academy of Pediatrics
[AAP], 2003). School psychologists can play a critical role in intervention
and must be aware of current best practice in treatment so that they may support
children and families struggling with and recovering from eating disorders.
Treatment may be done either on an inpatient or outpatient basis depending
on the level of symptomatology and the patient’s health status. Current
best practice in treatment recommends a multidisciplinary team to attend to
health status and medication issues, nutrition and meal planning, and psychosocial
treatment (American Psychiatric Association Work Group on Eating Disorders,
2000).
Health status and medication issues. A
physician specifically trained to work with individuals with eating disorders
should provide medical treatment. Outpatient medical treatment typically involves
the monitoring and treatment of physiological status (e.g., electrolyte levels,
weight, vital signs, medications). Although concerned with the patient’s
holistic wellness, primary medical treatment goals involve the normalization
of weight and stabilization physiological status. Of note, medication management
(e.g., antidepressants) is known to be efficacious in the treatment of BN,
with limited efficacy found among inpatients with AN (ADA, 200). Hospitalization
is used to stabilize physiological processes and symptoms and/or provide nourishment
through a refeeding process (AAP, 2003).
The school psychologist should be mindful of the variety of medical complications
associated with eating disorders. Medical complications consistent with caloric
restriction or starvation include moderate to severe cardiovascular complications,
gastrointestinal problems (e.g., constipation, bloating, liver malfunction),
renal difficulties, anemia, endocrine problems, and neurological irregularities
(AAP, 2003).Regarding BN, medical complications include electrolyte imbalance
and depletion of key nutrients, irreversible myocardial damage with use of
Ipecac (a product used to induce vomiting), esophageal damage, dental erosion,
gastric rupture, metabolic acidosis, chronic dehydration, menstrual irregularities,
and amenorrhea (AAP).
Nutrition and meal planning. A nutritionist
often works with the individual to develop a nutrition plan. Typically, meal
planning consists of three meals a day with snacks. A structured plan for eating
is created to address chaotic eating patterns that can trigger binging and
purging cycles or restriction, and to prevent hunger. Food logs are often used
to record food intake, behaviors, feelings, and associated thoughts. Nutritionists
may also offer nutritional guidance about issues such as weight regulation,
starvation effects, energy stasis, dieting and weight control misnomers, and
consequences of purging behaviors (American Dietetic Association, 2001).
Psychological treatment. Psychosocial
issues are typically addressed by a licensed mental heath professional with
training in the treatment of eating disorders.Treatment may include individual,
group therapy, support groups, and/or family therapy. For the treatment of
BN, research supports the efficacy of cognitive behavioral and individual psychotherapy
modalities (Rosenblum & Forman, 2002). For the treatment of AN, individual
and family therapy are often recommended (American Psychiatric Association
Work Group on Eating Disorders [APAWGED], 2000). However, no specific type
of individual therapy has been identified by research as most efficacious in
the treatment of AN (APAWGED).
School Supports and Transitions
Adequate support in the school setting can be a critical part of the treatment
and recovery process (Manley, Rickson, & Standeven, 2000). This is most
effectively accomplished within the context of a prevention-oriented school
atmosphere already promoting zero tolerance of in-school advertising, body
teasing, harassment, and gender-biased discourse, and by encouraging healthy
nutritional behaviors and opportunities for positive physical and expressive
experiences (e.g., soccer, yoga classes, track, swimming, art, and music; Cook-Cottone
et al., 2004). Whether the student is being reintegrated into school, is in
treatment, or is in recovery, the school psychologist can serve several supportive
roles. The roles include school contact to treatment team, student advocate,
supportive in-school counselor, and consultation with school faculty, administration,
and staff (Cook-Cottone et al., 2004).
Work with treatment team members. The
school contact person should communicate with the treatment team and coordinate
necessary treatments and supports in the school (Manlely et al., 2000). Releases
of information should be completed for all members of the treatment team. Consistent
communication with treatment providers facilitates meeting the student’s
academic, social-emotional, and physical needs. In some cases, educational
classification (e.g., Other Health Impaired) or a Section 504 plan and services
may be required. In cases of an extended inpatient hospitalization, academic
consultation may also be necessary. Of note, some extended stay hospitalization
programs include an academic component that collaborates with the school to
maintain the student’s academic growth.
School reintegration. If a student requires hospitalization
or day treatment, his or her re-entry to school is an important transition.
Providing support for this transition is vital to recovery (Manley et al.,
2000). The school psychologist should work with the treatment team and the
school to plan for reintegration and address the student’s medical, psychological,
and academic needs. Student needs may include supportive counseling, medical
monitoring, release from physical education classes, meal monitoring, and communication
with the treatment team and family. Special academic accommodations may be
necessary such as reduced workload, alternative assignments for some physical
education requirements, extended time on assignments and tests, peer tutoring
for missed coursework, copies of class notes, and access to quiet study locations
(Manley et al., 2000). The school nurse plays an important role in the reintegration
of students, and may be needed to check pulse, blood pressure, or other medical
issues. He or she also manages the medical releases and restriction information
for activities and meals. Some students prefer the school nurse for mandated
meal monitoring.
The school psychologist may also act as a student advocate. Advocacy issues
include eliciting support for accommodations, describing medication side effects
to increase teacher empathy, and helping students negotiate scheduling complications.
For example, because of treatment team appointments and visits to medical specialists,
students may have 3 to 6 weekly appointments that can be socially and psychologically
stressful. This schedule may disrupt academic functioning and cause frustration
among school personnel (Manlely et al., 2000). By working with the family,
treatment team members, and teachers, the school psychologist can help create
a schedule that minimizes academic impact and stress.
In-school counseling can augment out-of-school efforts (Cook-Cottone et al.,
2004). Helpful techniques include relaxation work, supportive and reflective
listening, and short-term, solution-focused or problem-solving approaches for
in-school issues. In addition, the treatment team psychologist may have specific
objectives for which the school psychologist can offer assistance within the
school.
While school psychologists can be a central resource for eating disorder
prevention and intervention, other school-based staff may also play important
roles. First, school psychologists can work with administrators to encourage
a healthy school climate by supporting zero-tolerance policies related to appearance-based
teasing, encouraging the appropriate school personnel to evaluate school lunches
to ensure inclusion of healthy options, and scheduling in-services to develop
a school-wide plan for dealing with concerns related to eating disorders.
Second, school psychologists can work with teachers to include prevention
information in the curriculum (e.g., media literacy, nutrition); discipline
students who discriminate or harass others based on size; model healthy attitudes
(e.g., eating and exercising with a goal of health rather than a goal of weight
loss); refer at-risk students for prevention programs, screening, and referral;
allow alternative assignments for class activities that may be triggers for
those with eating disorders such as weighing-in, co-education swimming classes,
or a calorie counting nutrition class; and focus on an individualized approach
to curricular goals that provides the flexibility needed by those struggling
with eating disorders.
Conclusion
School psychologists play a vital role in the prevention and treatment of
eating disorders through school-based prevention and treatment-support efforts.
This role includes active and developmentally appropriate prevention strategies.
It also includes identification and specialized prevention for students at
risk for eating disorders, and assessment and/or referral for those with emerging
clinical symptoms. Finally, this role includes collaboration and consultation
with all school personnel to create a healthy and responsible school environment
that supports treatment and maintenance of recovery efforts.
References
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© 2006, National Association of School Psychologists. Catherine Cook-Cottone,
PhD is an Assistant Professor and Director of School Psychology at the StateUniversity of New
York at Buffalo. Melinda Scime is a Doctoral Candidate
at the StateUniversity of New York at Buffalo.
Thanks to Assistant Editor Steve Landau for coordinating reviews of this
column for this issue.